Short answer: Neuroendocrine Tumors and cancers (NET) are an extremely rare orphan disease. Longer answer: It sucks to get an orphan disease that few doctors have ever seen. NET is less than 2% of overall cancers. It affects fewer than 200,000 people in the U.S. So it's a zebra, not a horse. (For those unfamiliar with medical euphemisms, if you look out in a farm field you expect to see a horse, not a zebra. Young doctors are famous for trying to say patients might have a rare zebra disease. The overwhelming majority of patients don't, they have much more common horse diseases.) In recognition of this fact, the neuroendocrine community uses the zebra to increase awareness about the disease. The symptoms of Neuroendocrine problems can show up anywhere in the body, most often in the gut. They are nonspecific enough they can be mistaken for many, many other things. It sucks even more to get the even rarer aggressive, systemic form of an orphan disease. Rainè Riggs had the mos...